Case: DOJ Investigation of Missouri's Skilled Nursing Facilities

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Case Summary

The U.S. Department of Justice (DOJ) opened an investigation into Missouri's skilled nursing facilities (otherwise known as a nursing homes or Level II facilities) on November 16, 2022, after receiving a complaint. The investigation was initiated pursuant to Title II of the Americans with Disabilities Act (ADA), which requires states to make reasonable modifications to enable adults with disabilities to live in the most integrated setting possible. DOJ's investigation involved extensive intervi…

The U.S. Department of Justice (DOJ) opened an investigation into Missouri's skilled nursing facilities (otherwise known as a nursing homes or Level II facilities) on November 16, 2022, after receiving a complaint. The investigation was initiated pursuant to Title II of the Americans with Disabilities Act (ADA), which requires states to make reasonable modifications to enable adults with disabilities to live in the most integrated setting possible.

DOJ's investigation involved extensive interviews with staff and individuals living in nursing homes, as well as interfacing with the three agencies in Missouri primarily responsible for coordinating services for people with mental health disabilities: the Department of Health and Senior Services (DHSS), the Department of Mental Health (DMH), and the Department of Social Services (DSS).

DOJ issued a findings report on June 18, 2024, finding that thousands of Medicaid-eligible adults with mental health disabilities were unnecessarily separated from their communities and placed in nursing homes, despite approximately half of eligible individuals with disabilities being under 65 and very few of them requiring assistance with basic physical activities. Individuals with mental health disabilities were clustered in 39 of the state's 500 nursing facilities. In addition, many of the individuals were under guardianship, with guardianship under public administrators found to serve as a pipeline to unnecessary institutionalization (public administrators in Missouri average a caseload of 91 people). Missouri's nursing facilities were found to be highly segregated institutions, preventing individuals from pursuing educational and job opportunities outside of the facility. In addition to physically segregating people, some nursing facilities also prevented residents from communicating with outside individuals. 

DOJ identified several remedial measures that Missouri had to engage with in order to comply with the ADA, including: (1) making more community-based services available (Assertive Community Treatment; peer support; supported employment; mobile crisis response; etc.); (2) increasing integrated housing; (3) ensuring that individuals in nursing homes are made aware of alternative living settings; (4) ensuring effective diversion from nursing facilities; and (5) ensuring appropriate transition from unnecessary guardianship for adults with disabilities. DOJ expressed that it was looking forward to working with Missouri to institute remedial measures.

Implementation of necessary remedial measures is ongoing.

Summary Authors

Hannah Juge (6/22/2024)

Documents in the Clearinghouse

Documents in this case

Investigation of Missouri's Use of Nursing Facilities and Guardianship for Adults with Mental Health Disabilities

June 18, 2024

June 18, 2024

Findings Letter/Report

Docket

Last updated Aug. 30, 2023, 1:25 p.m.

Docket sheet not available via the Clearinghouse.

Case Details

State / Territory:

Missouri

Case Type(s):

Disability Rights

Intellectual Disability (Facility)

Key Dates

Case Ongoing: Yes

Plaintiffs

Plaintiff Description:

The U.S. Department of Justice's Civil Rights Division

Plaintiff Type(s):

U.S. Dept of Justice plaintiff

Attorney Organizations:

U.S. Dept. of Justice Civil Rights Division

Public Interest Lawyer: Yes

Filed Pro Se: No

Class Action Sought: No

Class Action Outcome: Not sought

Defendants

State

Missouri Department of Health and Senior Services

Missouri Department of Mental Health

Missouri Department of Social Services

Defendant Type(s):

Jurisdiction-wide

Facility Type(s):

Government-run

Case Details

Causes of Action:

Americans with Disabilities Act (ADA), 42 U.S.C. §§ 12111 et seq.

Other Dockets:

No Court

Available Documents:

Findings Letter/Report

Outcome

Prevailing Party: None Yet / None

Relief Granted:

None yet

Source of Relief:

None yet

Issues

Disability and Disability Rights:

Intellectual/developmental disability, unspecified

Least restrictive environment

Mental Illness, Unspecified

Mental impairment

Reasonable Accommodations

Discrimination Basis:

Disability (inc. reasonable accommodations)

Recommended Citation